NBIA Suisse supports patients and families, promotes research and raises awareness about rare neurological diseases.
NBIA Suisse pursues three core objectives
We provide moral and practical support to patients and their families in Switzerland and beyond.
We raise awareness among the public, physicians and authorities about NBIA disorders and improve diagnosis rates.
We selectively fund scientific projects aimed at developing new therapies and treatment approaches.
NBIA (Neurodegeneration with Brain Iron Accumulation) encompasses a group of rare, genetically determined neurological disorders characterized by abnormal iron accumulation in the basal ganglia of the brain. These structures regulate movement — their damage leads to progressive movement disorders.
The main NBIA subtypes
Pantothenate Kinase-Associated Neurodegeneration
Beta-propeller Protein-Associated Neurodegeneration
Mitochondrial-membrane Protein-Associated Neurodegeneration
PLA2G6-Associated Neurodegeneration
Fatty Acid Hydroxylase-Associated Neurodegeneration
ATP13A2-associated neurodegeneration
NBIA Suisse was founded by Dr. Fatemeh Mollet after three of her nieces were diagnosed with MPAN. The association is based in Lausanne and has been a member of the international NBIA Alliance since October 2015.
We provide information in German, French, English and Persian (Farsi) to reach families worldwide.
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